Thursday, March 14, 2013

TAMRA'S TALES FROM THE WARD (Written 031313)


I have been awake all night and I am very introspective, so please forgive me if my mood seems melancholy.  Sometimes the greatest insights and most valuable wisdom live in the shadows under an umbrella of sleep deprived “enlightenment”.

Have you ever been so overwhelmed by the “stuff” happening in your life that you slipped into “survival mode”?  All the elementary functions that you daily take for granted now depend on you continuously having to remind yourself to just put one foot in front of the next; to take one baby step at a time, to just breathe?  Today that is the geography of the path my journey has taken me to.  I don’t like being here because the tiniest pebbles become boulders, but every time I walk this path I emerge more complete.  And when I’m out of the forest and delivered into the sunlight, I look back and realize how much that tangle gave me, how much the better I am for having navigated it.

Here, in the tangle of brambles in which I find myself, I have once again discovered extraordinary people from whom I take inspiration.  I want to share them with you in the hope that like me, you will be all the better for the life-wisdom they have to share. 

There is a middle-aged man who works in the Transport department here at the hospital.  In my brief stay, he has already carted me around the campus 3 times, each time brightening my day with his extra sunny disposition, his shout-outs to individual nurses by whom he is loved in each department, and his endless ability to smile and laugh.  He is a special needs individual who came to work at the hospital when he was 15 years old and the hospital sat in a farm field.  For at least 30 years, 6 days a week, this is what he has done, undoubtedly selflessly and enthusiastically.  Where does that come from? 

It’s easy to chalk it up to “simplicity” or “ naivete”, but this man is anything but that.  He has only to transport someone once and he knows and remembers who they are and what they talked about.  He doesn’t shuffle along while pushing beds and chairs at least twice the weight and size of his small frame.  No, his visibly crippled legs carry him with a grace and briskness of pace that demonstrate his desire to transport as many patients as he can in a single day and to brighten their day in the process.

I asked him, “how do you deal with all that you see here every day and always smile and shine your light?”  He said, “Oh, I love what I do!  I love the doctors and the patients, even the grumpy ones.  I know that if I can make them smile or, better yet, giggle, I’ve really done something great. And even if I can’t I come away feeling better for having tried.”  I told him that he is a rare gem and to never lose the incredible attitude that has carried him smiling through what I know has been a lifetime of what most of us would consider “hardship” and “disability”.  There is nothing “disabled” about this man.  He is a living testament to the adage; “don’t ever judge a book by its cover, “ for the eyes, they doth deceive.

There is a 68-year-old Nurse/Technician who’s loving warmth, sense of humor, and razor sharp wit are rarely witnessed in a person who has worked at the same hospital full-time for 37 years.  To see and hear her, one would never know she faced a single day of struggle.  Yet having grown up in one of the most dangerous areas of Chicago, attended “the worse” schools in the nation and buried her soul mate early in life, leaving her a single parent to several children, I know that she is a friend to “struggle”, “hardship”, and “pain”.  Where does she come from?

We reminisced about growing up in Chicago (proper), about Riverview Amusement Park and Roller Rink, about the neighborhood parks, the people, the pizza and the hotdogs.  I came from the sunny side of the tracks and rode in my parents’ car.  She came from the shadey side of the tracks and felt privileged whenever she could ride the bus.  People on my side went to “private” (often parochial) schools.  She and her friends dodged bullets and gang violence on their way to and from what was nationally rated as one of the top 5 “worse school districts”.  My mother was a “stay-at-home-mom”.  Her mother took the bus to the wealthy neighborhood of Glencoe every day, 7 days a week, and was “nanny” and housekeeper for a wealthy family there.  I watched my mother pay for college and become a CPA.  She watched her mother earn the love and affection of the family she worked for for so long that they paid to send her to nursing school, and that was what it meant to be “privileged”. 

She shared a priceless "Norman Rockwell moment that I must share with you, because it speaks to the innocence and the perspective that has sustained her, her whole life, preserving the joyful, vibrant child in her, unsinged by circumstance to this day.  Her best friend was the daughter of the wealthy family her mother worked for.  They played together, laughed together, and dreamed together, at one time dreaming of becoming “ladies of the night” together because they both liked the shoes, the makeup, and the fashion.  One day they were sitting on the curb outside the Glencoe mansion eating candy together, when her friend said to her, “you know, you look so chocolate; you’re like a little chocolate ice cream cone.”  She replied, “and you, you are so white, you look like a little vanilla ice cream cone.”  The idea came to light in both children’s heads at the exact time, and they licked each other on the face.  “Oooh, you don’t taste like chocolate at all,” her friend told her, through scrunched up face.  “And you don’t taste like any vanilla ice cream I ever wanna eat,” she said back.  Then they just laughed and returned to looking at their world through glasses that did not see color, never re-visiting the societal subject that, for the most part, kept them both on their own side of the fence until the lines of racial discrimination began leaving room for small holes.  Her friend is a lawyer.  She is a nurse.  And "Chocolate" and "Nilla", well, even though they live in distant cities, they're close to this day.


We choose the lens through which we see our world. Some of us wear glasses so dark and dim that very little light can shine through.  Others of us put on “rose colored glasses” at birth and never take them off, even as life tries to rip them from the face.  Those are the people you want to be around.  They are enlightening, uplifting, and a breath of fresh air every time you are privileged enough to be in their presence.  She is one of those people and any patient not too blind to see, has to be positively affected every time she shines her light in their room.  I know I have been, and I truly thank her for it.


From him I learned the value of positive attitude.  From her I learned the need to choose and maintain the perspective that serves you best.  From this whole experience, I've learned that beauty and enlightenment are everywhere, even in the tangles, if we just open our hearts to it.  I've been reminded, once again, that people are put on our path, at the exact “right time”, in exactly the “right place” where we can grow from “experiencing” one another.  All that we must do is be alert to them and embrace the opportunities as they present themselves.  I've learned that at the deepest levels, the human “soul” is self-sustaining or self-destructive, but the choice is ours to make.  
CATSPECTIVE 101
"DON'T SHUTTER YOUR HEART"
It’s OK sometimes to put on the dark glasses, but never choose to wear them long, for they will eventually shutter your heart.  Regardless of circumstances, wake up every day reaching for the rose colored ones.  They will lift the shades of your mind and color you receptive, so that the special “God” moments in your life aren't missed, and the extraordinary people you are destined to meet can brighten your path and enlighten you as they were meant to.    

 but....necessary




Sunday, September 23, 2012

TAMRA'S LEFT THE WARD!

It is Sunday morning and I woke up at home, in my own bed, at my own time, in my own way, with my stuffed bear (aka hospital companion) Burny beside me.  OMG, it is good to be home!  There is something about the smell of home, the feel of home, the taste of home, that nothing else can be a substitute for (even no dishes or laundry...and that's sayin somethin).  Anyone whose been through a crisis of any sort that forced them from home for any period of time more than 2 days knows what I am talking about when I say, home embraces you in a way nothing else can. 

When I come home from the hospital on high dose corticosteroids (which is every time I come home from the hospital), I CAN'T sit still.  I MUST get up and move around or my brain will explode from the pace of the thoughts racing through it.  Physical activity is a necessary distraction, though it drives my family to distraction, frustration, and frayed nerves. They want to see me park in a chair and just "take care of myself" like they see me doing when I am in the hospital.  And because I love them, and do so want to set them at ease, I really try.  I lost 11 pounds in 8 days, all of it due to a racing heart rate induced by high dose corticosteroids which helped burn calories.  My blood sugars now, as is customary for me when I am at the end of a crisis that required hospitalization, are falling so low, so fast, I have to be on constant alert to bad Hypoglycemic reactions.

In short, while I have returned to the warm, loving embrace of my home and family, the recovery is just beginning.  But I had to take a moment to thank you all for reading, for writing back, for calling, for e-mailing, for praying, well....JUST FOR CARING AND FOR BEING THERE FOR ME.  People and relationships are the reason we keep on keeping on.  There would be no point otherwise, regardless of the height of the challenges we each face.  I thank you for that. You will never know how much you mean to me.

I learned a lot during this hospital stay, but my greatest lessons were these, and I hope they came through in my journaling of the experience which is now at an end:

1)  Listen to your body, to it's signals, to it's whispers.  Respect what it tells you and live within the  limits it conveys.  There is so much life to be lived there, you will never feel deprived or wonder, "what's on the other side?",   IF you respect your own body and give all you have to the life you can live within it's means.

2)  Love is the greatest medicine of all.  It doesn't need needles, or pedi-cups, or catheters.  It is easily conveyed with a hug, a touch, or a whisper.  Seek to love all you see, and all who touch your life.  You won't be sorry you made the effort, and will even be surprised at how many extraoridinary people that effort brings into your circle and into your heart.

3)  Grow where you are planted.  THRIVE and need no more, for life itself is the greatest gift.  Cherish, NO TREASURE every moment because that WAS the last, and every breath brings life anew.  

To all of you out there, who helped me get here,  thanks for delivering me home!

Friday, September 21, 2012


THINGS I MISS
ON THE WARD

        Well, I definitely have been in the hospital too long because heart and homesickness is setting in.  Here’s a list of a few of the things I miss right now!  How about you?  What would you miss if someone crated you for a week, away from friends, family, and all the conveniences of home?  I ask because you are in a unique position right now to take a moment to just appreciate them, whatever they may be, to say thank you to them (yes, even the inanimate objects)…and to just indulge!  ISN’T LIFE GRAND!

 

HUGS


Good Coffee

DOGGY LICKS!!!!!!!


Good Coffee

“Hey Mom?”

More Good Coffee

SHOWERS


Margaritas


CLEAN HAIR

A Second Margarita When Nobody is Looking (tastes better)

PAJAMAS

Green Tea

BIG PINK MAXINE Terry Cloth Bath Robes

The Smell of Fabric Softener

Pillows that stay Fluffed

SOFT TP

PRIVACY

S


   I

    L

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          C
           
              E

Sunday, September 16, 2012

10 UNIVERSAL TRUTHS ABOUT THE HOSPITAL


HELPFUL TIPS FROM THE WARD: 09/16/12

 
10 Universal Truths About the Hospital

Over my 21 years of chronic illness, I have perfected the art of the “hospital stay”.  I have observed, studied, ease dropped, researched, recorded, and filed all the important stuff one should know before your hospital stay like; what to expect, what will invariably happen, how to set your expectations properly, how to surrender all humility gracefully cuz your gonna lose it anyway.  These, I propose, are the “Universal Truths” that will reveal themselves to you in one way or another no matter the hospital, the length of your stay, or any language/cultural differences. I am only sharing them because you are special to me.  Please keep them to yourself, as we wouldn’t want to give the opposition an added advantage.

1)      No matter the number of snaps or ties on your gown, you will discover that some personal part of you was hanging out of it only after you return to your room from a walk around the ward.

2)      No matter how hard you try to prevent it, your telephone will always ring only after you are seated on the throne and fully engaged in the ever so publicly discussed and charted “bowel movement”, or as soon as your doctor walks in the room.

3)      No matter the reason for your hospital stay you can expect to get up close and personal with the volume and number of cc’s of your “urine output” as it will be collected in a “toilet hat”, and never emptied (except by you as you stand, legs crossed, trying not to wet yourself). Ditch that thing in the farthest garbage can from your room as soon as the nurses are not looking.  A second one will rarely reappear.

4)      The best companion for a lengthy stay is a medium sized stuffed teddy bear.  I know, ‘you’re adults, and adults don’t indulge such childishness”, but trust me you will be able to be much more civil to all you meet after hugging, smashing, and even punching the stuffin outta that thing whenever necessary.

5)      The “Free” footies are free for a reason.  They have no top or bottom, no heal or toe allotments and this makes them “free” to head in any direction they like…and they will.  The anti slip part will wind around your ankles such that the only thing they keep from slipping will be your hairy ankles. So, BYOS…Bring Your Own Socks!

6)      Hospital “Mr. Klienex”, need I say more?  If you value your nose, your lips, your cheeks, only use the hospital “Klienex” as a paper weight; smash it and use it as a bookmark; but whatever you do…DO NOT USE IT ON YOUR FACE!  So, BYOK…no explanation needed.

7)      The water mug; there is an astounding phenomenon going on in the medical world with regard to the coveted water mug. 21 years ago the mug was big enough to hold about 40oz of liquid. Five years ago it shrank to an approximate volume of 32oz.  Today it is clearly marked as 19oz if filled to the very brim.  So, I want to know, is it an attempt at rationing water or minimizing exposure to plastic poisons?  If you know you are going to be bed bound for any length of time (like bedpan style) BYOC with a side water reservoir as the nurses will be too busy running just trying to refill all those tiny water mugs and you will dry up like a raisin in the sun waiting for yours!

8)      Do not be timid about rolling your suitcases into the ER or Admissions Department.  They will look at you funny, but so what?  Bring everything you will need for the length of time they say you will stay, and then pack the second suitcase with everything you need to be comfortable and entertained “for the long haul”.  A PC or tablet and a smart phone are must bring items!  I am convinced hospital stays are the reason social networking is such a huge success.

9)      Look for the funny in everything!  The “I wanna cry” will always be stalking you.  Don’t let it catch you because nothing good comes from it, and if forced to use their “Mr. Klienex” you will be sad and deskinned!  Laugh at your bad hair. Look for the “cloud figures” in all of your wrinkle spots. Chuckle at how you are beginning to smell because you “aren’t allowed” to shower.  Patient bed smells are a great line of first defense in fighting off the vampires!

10)   Roll on the floor laughing when your friends and colleagues say they’re coming to visit you. Take a picture of yourself and put it out there on “facebook” right away so the embarrassment is over in one grand post and everyone knows what to expect.  For me the caption always includes; “Face red and round, neck vanished, as many chins as a Chinese phonebook.”  There…it’s over and nobody is expecting anything less than your very worst photo ever!  In this case if you are not photogenic, you have an added advantage over those who are, because you will look better in person.

 
Guard and hold these Universal Truths always within your heart, for whosoever knows them going in, they shall, in some small way, be the victor!